Patient Activation Group (PAG)

Patient Activation Group (PAG) Patient Activation Group (PAG) Patient Activation Group (PAG)
  • Home
  • About Us
  • Our Impact
  • PROGRAMMING
  • More
    • Home
    • About Us
    • Our Impact
    • PROGRAMMING

Patient Activation Group (PAG)

Patient Activation Group (PAG) Patient Activation Group (PAG) Patient Activation Group (PAG)
  • Home
  • About Us
  • Our Impact
  • PROGRAMMING

About Us

Our Mission

We accelerate the development of curative therapies for oncology and rare diseases by activating collaboration between research institutions, government, industry, and patient-driven foundations.

We Make a Difference

Our team of esteemed opinion leaders go beyond mere engagement, driving meaningful action every step of the way. 


We work with partners across the rare and oncology communities to co-create new tools and pathways to discovery.

WE’RE LEADERS WHO BUILD AWARENESS, EDUCATE AND ACTIVATE.

Our founder and lead activator: John Hopper 

  • Cancer and Rare Disease Leader
  • Corporate CEO


Recognition areas include: 

  • Chan Zuckerberg Initiative: Inaugural cancer foundation to receive “Rare as One’ network funding
  • US Bipartisan Congressional Caucus: Rare Cancer Day founders
  • Fred Hutch Cancer Center: Advisory Board for rare cancer TRACER initiative
  • National Organization Rare Disorders (NORD): Founders of the Rare Cancer Coalition
  • Target Cancer: TRACK rare cancer clinical and precision medicine trials
  • GI Cancers Alliance: Co founder/Co chair of the largest collaboration of GI cancer foundations, research centers and GI-Focused corporations
  • National Pancreas Foundation: Executive Board/Advisory Board
  • Sarcoma Action for Research Collaborations (SARC): Executive Board
  • Department of Defense, CDMRP Rare Cancer Advisory Committee: Expert Reviewers
  • NIH/NCI: MyPART Initiative Participant
  • Fibrolamellar Cancer Foundation: Past President
  • Shepherd Therapeutics: Board Director
  • Khora Biotech: Advisory Board
  • World Orphan Drug Conference: Key Panelists
  • National Executive Service Corp (NESC): Consultant
  • Hopper-Belmont Foundation: Founders
  • And much more!



Patient Activators

Copyright © 2025 Patient Activators - All Rights Reserved.

Powered by

This website uses cookies.

We use cookies to analyze website traffic and optimize your website experience. By accepting our use of cookies, your data will be aggregated with all other user data.

Accept