We’re a well-networked and respected team of leaders who build awareness, educate and activate.
Some high profile leadership and network examples:
- Chan Zuckerberg Initiative: Inaugural cancer foundation to receive “Rare as One’ network funding
- US Bipartisan Congressional Caucus: Rare Cancer Day founders
- Fred Hutch Cancer Center: Advisory Board for rare cancer TRACER initiative
- National Organization Rare Disorders (NORD): Founders of the Rare Cancer Coalition
- Target Cancer: TRACK rare cancer clinical and precision medicine trials
- GI Cancers Alliance: Co founder/Co chair of the largest collaboration of GI cancer foundations, research centers and GI-Focused corporations
- National Pancreas Foundation: Executive Board/Advisory Board
- Sarcoma Action for Research Collaborations (SARC): Executive Board
- Department of Defense, CDMRP Rare Cancer Advisory Committee: Expert Reviewers
- NIH/NCI: MyPART Initiative Participant
- Fibrolamellar Cancer Foundation: Past President
- Shepherd Therapeutics: Board Director
- Khora Biotech: Advisory Board
- World Orphan Drug Conference: Key Panelists
- National Executive Service Corp (NESC): Strategic Planning Consultants
- Hopper-Belmont Foundation: Founders