Patient Activation Group (PAG)

Patient Activation Group (PAG) Patient Activation Group (PAG) Patient Activation Group (PAG)
  • Home
  • About Us
  • Our Impact
  • PROGRAMMING
  • More
    • Home
    • About Us
    • Our Impact
    • PROGRAMMING

Patient Activation Group (PAG)

Patient Activation Group (PAG) Patient Activation Group (PAG) Patient Activation Group (PAG)
  • Home
  • About Us
  • Our Impact
  • PROGRAMMING

programming

Examples:

  • Panel and Round Table Discussion:  Major conferences including Government, Industry, Academia and Patient organizations - NORD, Chan Zuckerberg Initiative, World Orphan Drug Conference 
  • Celebrity/Properties partnerships: HIV/Magic Johnson; Diabetes/Laila Ali; Cardiology/Larry King; Osteoporosis/Julie Andrew; Allergies/MLB; 
  • Inaugural Scientific Conferences — Led by patient organizations
  • Patient Research Consortiums — NORD Rare Cancer Coalition; GI Cancers Alliance
  • Strategic Planning: one, five and ten year plans
  • Board Creation: Directors, Medical/Scientific; Patient Advocacy
  • Branding: Rare Cancer Day launch/USA Cancer Caucus annual resolution of support
  • Educational programs; Articles; Social Media; Live interviews/speeches

Publications and Honors:

  • National Organization Rare Disorders (NORD): Abby Myer Leadership Award
  • CZI: Inaugural cancer foundation to included in the the Rare As One
  • Network
  • Pediatric Brain Cancer Collaboration Journal: Co-published with Day One pharma 
  • Fred Hutch TRACER: Semi Annual Scientific Meetings publications
  • USA Congressional Cancer Caucus: Rare Cancer Day Resolutions – 2023/2024
  • Global Genes: Review Magazine Lead Story Interview
  • Podcasts: Matt Zachery; Craig Lustig

Patient Activators

Copyright © 2025 Patient Activators - All Rights Reserved.

Powered by

This website uses cookies.

We use cookies to analyze website traffic and optimize your website experience. By accepting our use of cookies, your data will be aggregated with all other user data.

Accept